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Assessment of Transition Plan Implementation and Provider Engagement Amongst Adults Affected by Spinal Muscular Atrophy (SMA)

Author:Eisenman, Lauren   Curry, Mary   Belter, Lisa   Jarecki, Jill   Schroth, Mary   

Session Name:P2: Neuromuscular Disease: ALS, SMA, and Other Motor Neuron Disorders 1  

Topic:Neuromuscular and Clinical Neurophysiology (EMG)  

Program Number:P2.011  

Author Institution:Cure SMA, Elk Grove Village, IL  Cure SMA, San Diego, CA  

Comparing Spinal Muscular Atrophy (SMA) outcomes between a patient-reported membership database and a clinical data registry

Author:Belter, Lisa   Whitmire, Sarah   Curry, Mary   Schroth, Mary   

Session Name:P2: Neuromuscular Disease: ALS, SMA, and Other Motor Neuron Disorders 1  

Topic:Neuromuscular and Clinical Neurophysiology (EMG)  

Program Number:P2.012  

Author Institution:Cure SMA, Elk Grove Village, IL