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NF1 Recommendation-Based Care Delivery: A Survey of Patients and Caregivers

Author:Jordan, Justin   Merker, Vanessa   Chibnik, Lori   Ma, Yidan   Ullrich, Nicole   Yohay, Kaleb   Knight, Pamela   Radtke, Heather   Plotkin, Scott   

Session Name:P3: Practice, Policy and Ethics: Improving Patient Care & Research 1  

Topic:Practice, Policy, and Ethics  

Program Number:P3.002  

Author Institution:Massachusetts General Hospital, Boston, MA  Harvard School of Public Health, Boston, MA  Boston Children's Hospital, Boston, MA  NYU Langone Medical Center, New York, NY  Children's Tumor Foundation, New York, NY  Children's Tumor Foundation  Medical College of Wisconsin, New York, NY  

Using Qualitative Interviews to Improve Quantitative Assessments of Quality of Life in Patients with Neurofibromatosis 2

Author:Von Imhof, Liesel   Plotkin, Scott   Yohay, Kaleb   Nghiemphu, Leia   Babovic-Vuksanovic, Dusica   Merker, Vanessa   

Session Name:P7: Neuro-oncology: Advancing Outcomes in Neuro-oncology  

Topic:Neuro-oncology  

Program Number:P7.006  

Author Institution:Massachusetts General Hospital, Boston, MA  NYU Langone Medical Center, New York, NY  UCLA, Los Angeles, CA  Mayo Clinic, Rochester, MN  

Identifying Lesions of the Corpus Callosum in Patients with Neurofibromatosis Type I

Author:Jandhyala, Nora   Garcia, Mekka   Kim, Monica   Segal, Devorah   Yohay, Kaleb   

Session Name:P8: Neuro-oncology: Cancer Predisposition Syndromes  

Topic:Neuro-oncology  

Program Number:P8.004  

Author Institution:NYU Grossman School of Medicine, New York, NY  NYU Langone Health, New York, NY  Nationwide Children’s Hospital, Columbus, OH