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NF1 Recommendation-Based Care Delivery: A Survey of Patients and Caregivers

Author:Jordan, Justin   Merker, Vanessa   Chibnik, Lori   Ma, Yidan   Ullrich, Nicole   Yohay, Kaleb   Knight, Pamela   Radtke, Heather   Plotkin, Scott   

Session Name:P3: Practice, Policy and Ethics: Improving Patient Care & Research 1  

Topic:Practice, Policy, and Ethics  

Program Number:P3.002  

Author Institution:Massachusetts General Hospital, Boston, MA  Harvard School of Public Health, Boston, MA  Boston Children's Hospital, Boston, MA  NYU Langone Medical Center, New York, NY  Children's Tumor Foundation, New York, NY  Children's Tumor Foundation  Medical College of Wisconsin, New York, NY  

Barriers to participation in a prospective clinical trial for schwannomatosis-related pain

Author:Plotkin, Scott   Da, Jennifer   Merker, Vanessa   Jordan, Justin   Ly, Ina   Muzikansky, Alona   parsons, michael   wolters, pamela   xu, lei   Brown, Mark   styren, scot   

Session Name:P7: Neuro-oncology: Advancing Outcomes in Neuro-oncology  

Topic:Neuro-oncology  

Program Number:P7.003  

Author Institution:Massachusetts General Hospital, Boston, MA  Pappas Center for Neuro-Oncology, Boston, MA  Mass General Cancer Center, Boston, MA  NIH, Bethesda, MD  Pfizer Inc., Kalamazoo, MI  Pfizer, New York, NY  

Using Qualitative Interviews to Improve Quantitative Assessments of Quality of Life in Patients with Neurofibromatosis 2

Author:Von Imhof, Liesel   Plotkin, Scott   Yohay, Kaleb   Nghiemphu, Leia   Babovic-Vuksanovic, Dusica   Merker, Vanessa   

Session Name:P7: Neuro-oncology: Advancing Outcomes in Neuro-oncology  

Topic:Neuro-oncology  

Program Number:P7.006  

Author Institution:Massachusetts General Hospital, Boston, MA  NYU Langone Medical Center, New York, NY  UCLA, Los Angeles, CA  Mayo Clinic, Rochester, MN