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Delphi Consensus Panel on Assessing Clinically Meaningful Treatment Outcomes in Adults Living with Spinal Muscular Atrophy (SMA)

Author:Sully, Kate   Chiriboga, Claudia   Duong, Tina   Erbas, Yasemin   Glascock, Jacqueline   Gusset, Nicole   Muni-Lofra, Robert   O'Connell, Colleen   Vázquez-Costa, Juan F   Walter, Maggie C   Guittari, Carol Jean   Cochrane, James   Townson, Louisa D   Kufakwaro, Jason   Marciniak, Anne   Riley, Danielle   Nam, Julian   

Session Name:P2: Neuromuscular and Clinical Neurophysiology (EMG): Spinal Muscular Atrophy and Hereditary Neuropathies  

Topic:Neuromuscular and Clinical Neurophysiology (EMG)  

Program Number:P2.007  

Author Institution:Roche Products Ltd, Welwyn Garden City, United Kingdom  Columbia University Irving Medical Center, New York, NY  Stanford University, San Francisco, CA  SMA Europe, Freiburg, Germany  Cure SMA, Elk Grove Village, IL  Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom  Stan Cassidy Centre for Rehabilitation, Fredericton, NB, Canada  Hospital Universitari i Politècnic La Fe, Valencia, Spain  LMU Munich, Munich, Germany  Genentech, Inc., South San Francisco, CA  Adelphi Values PROVE™, Bollington, United Kingdom  F. Hoffmann-La Roche Ltd, Basel, Switzerland