Disclosures for "Delphi Consensus Panel on Assessing Clinically Meaningful Treatment Outcomes in Adults Living with Spinal Muscular Atrophy (SMA)"
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Dr. Sully has received personal compensation for serving as an employee of Roche Products Ltd.
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Dr. Chiriboga has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Genentec. Dr. Chiriboga has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. The institution of Dr. Chiriboga has received research support from Roche. The institution of Dr. Chiriboga has received research support from Avexis/Novartis. The institution of Dr. Chiriboga has received research support from Biogen. The institution of Dr. Chiriboga has received research support from NIH. The institution of Dr. Chiriboga has received research support from Biohaven. The institution of Dr. Chiriboga has received research support from Genentec. Dr. Chiriboga has received publishing royalties from a publication relating to health care.
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Tina Duong has received personal compensation for serving as an employee of Roche. Tina Duong has received personal compensation for serving as an employee of Novartis. Tina Duong has received personal compensation for serving as an employee of Scholar Rock. Tina Duong has received personal compensation for serving as an employee of Genentech. Tina Duong has received personal compensation for serving as an employee of Novartis. Tina Duong has received personal compensation for serving as an employee of Sarepta. Tina Duong has received personal compensation for serving as an employee of Biogen. Tina Duong has received personal compensation for serving as an employee of Audentes. Tina Duong has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Roche. Tina Duong has received personal compensation in the range of $0-$499 for serving as a Consultant for Audentes. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Genentech. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Sarepta. Tina Duong has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for biogen. The institution of Tina Duong has received research support from biogen. The institution of Tina Duong has received research support from scholar rock.
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Dr. Erbas has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Dr. Erbas has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis Gene Therapies.
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Dr. Glascock has received personal compensation for serving as an employee of Cure SMA.
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Dr. Gusset has received personal compensation for serving as an employee of SMA Europe.
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Mr. Muni Lofra has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Mr. Muni Lofra has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Biogen. Mr. Muni Lofra has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche.
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Dr. O'Connell has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for MT Pharma. Dr. O'Connell has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. O'Connell has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Amylyx. Dr. O'Connell has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. O'Connell has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for MT Pharma. Dr. O'Connell has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Biogen. The institution of Dr. O'Connell has received research support from Roche. The institution of Dr. O'Connell has received research support from Praxis Spinal Cord Institute. The institution of Dr. O'Connell has received research support from CAnadian Neurologic Diseases Registry. The institution of Dr. O'Connell has received research support from Cytokinetics. The institution of Dr. O'Connell has received research support from Annexon. The institution of Dr. O'Connell has received research support from MTPharma.
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Dr. Vázquez Costa has received personal compensation in the range of $0-$499 for serving as a Consultant for Biogen and Roche. The institution of Dr. Vázquez Costa has received research support from Roche.
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Prof. Walter has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for PTC. Prof. Walter has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Roche. Prof. Walter has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Biogen. Prof. Walter has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Edgewise. Prof. Walter has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Prof. Walter has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Prof. Walter has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for PTC. Prof. Walter has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Biogen. Prof. Walter has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Pharnext. Prof. Walter has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for PTC. Prof. Walter has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Roche.
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Mr. Cochrane has received personal compensation for serving as an employee of Adelphi Values PROVE.
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Louisa Townson has received personal compensation for serving as an employee of F. Hoffmann-La Roche.
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Mr. Kufakwaro has received personal compensation for serving as an employee of Adelphi Values PROVE.
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Dr. Marciniak has received personal compensation for serving as an employee of Adelphi Values PROVE. Dr. Marciniak has stock in Pfizer. Dr. Marciniak has stock in Amgen. Dr. Marciniak has stock in Abbvie. Dr. Marciniak has received personal compensation in the range of $500-$4,999 for serving as a Employee with Access and Patient Research Limited.
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Danielle Riley has received personal compensation for serving as an employee of PCORI.
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Mr. Nam has received personal compensation for serving as an employee of Hoffmann-La Roche Ltd. Mr. Nam has stock in Hoffmann-La Roche Ltd.