Of all respondents (N=6,360), 71% reported having been diagnosed with ≥1 nervous system related condition. The most common was neuropathy (46%), followed by migraine (38%); 59% percent of men (n=239) reported a diagnosis of neuropathy.
A majority reported experiencing the following symptoms at least once during the 12 months prior; brain fog (77%), neuropathy (61%), feeling faint or dizzy (56%), headache (56%), and muscle weakness (54%). A majority reported daily or weekly occurrence of these symptoms (range: 64-85%) and a major or moderate impact of the symptom on their life (range: 54%-78%). A larger proportion of men reported a major or moderate impact due to symptoms of neuropathy (71% versus 63% of women), whereas 78% of women reported a major or moderate impact of brain fog, compared to 69% of men.
Most of the sample reported at least one neurological condition or symptom (n=6072); these respondents were more likely to report SjD negatively affected their participation in social activities, in hobbies or extracurricular activities, activities of daily living, job/career or ability to work, and ability to exercise (OR range: 4.77-8.00) compared to respondents who did not report any neurological condition or symptom (n=288). Respondents with neurological manifestations were more likely to state that SjD adds an emotional burden to their life (OR 3.78).