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Lived Experiences and Challenges Among Caregivers of Children with Dystrophinopathies in Zambia: A Qualitative Study.

Author:Patel, Namita   Kapapa, Musambo   Ackers, Ian   Adams, Heather   Bearden, David   Horvath, Rita   Schon, Katherine   Kawatu, Nfwama   Somwe, Somwe Wa   Kvalsund, Michelle   

Session Name:P3: Child Neurology and Developmental Neurology: Neuromuscular Disorders 1  

Topic:Child Neurology and Developmental Neurology  

Program Number:P3.003  

Author Institution:University of Rochester Medical Center, Rochester, NY  University Teaching Hospital Zambian Institute for Neurological Care, Research and Education (ZINCARE), Zambia  University of Minnesota, Gillette Children's Specialty Hospital, MN  University of Rochester Medical Center, NY  University of Cambridge, United Kingdom  University Teaching Hospital, Zambia  

Disruptive Sleep in Developmental and Epileptic Encephalopathies: Interim Results of a Caregiver Survey

Author:Wilkinson, Andrea   Bearden, David   Bryan, Brad   Devine, Eileen   Freed, Amber   Graglia, J. Michael   Lothe, Amelie   Manzo, A. Michelle   Martin, Mercedes   Meskis, Mary Anne   Son Rigby, Charlene   Sourbron, Jo   Utley, Karen   Bailey, Laurie   

Session Name:P4: Epilepsy/Clinical Neurophysiology (EEG): Epilepsy Comorbidities, Patients, and Caregiver Perspectives  

Topic:Epilepsy/Clinical Neurophysiology (EEG)  

Program Number:P4.002  

Author Institution:UCB, Emeryville, CA  University of Rochester Medical Center, Rochester, NY  KCNT1 Epilepsy Foundation, Scottsdale, AZ  CACNA1A Parent Coach and Consultant, OR  SLC6A1 Connect, TX  SynGAP Research Fund, CA  UCB, Colombes, France  UCB, GA  UCB, Smyrna, GA  STXBP1 Foundation, Holly Spring, NC  STXBP1 Foundation, NC  Universitair Ziekenhuis (UZ) Gent, Ghent, Belgium  International Foundation for CDKL5 Research, OH  

Natural History of YWHAG-associated Neurodevelopmental Disorder

Author:Morcos, Sara   Falbo, Kristin   Seltzer, Laurie   Bearden, David   

Session Name:P4: Child Neurology and Developmental Neurology: Neurogenetics 1  

Topic:Child Neurology and Developmental Neurology  

Program Number:P4.003  

Author Institution:University of Rochester School of Medicine and Dentistry , Rochester, NY  University of Rochester School of Medicine and Dentistry, Rochester, NY  University of Rochester School of Medicine, Rochester, NY  

Neurocognitive Impairment Classification in Pediatric HIV: Comparing Frascati and GDS Criteria

Author:Raskopf, William   Mbewe, Esau   Adams, Heather   Park, Sue   Mweemba, Milimo   Kabundula, Pelekelo   Bearden, David   

Session Name:P7: Child Neurology and Developmental Neurology: Neurogenetics 2  

Topic:Child Neurology and Developmental Neurology  

Program Number:P7.008  

Author Institution:University of Rochester School of Medicine, Rochester, NY  University Teaching Hospital, Neurology Research Office, Lusaka Zambia, Zambia  University of Rochester School of Medicine, NY  University Teaching Hospital, Neurology Research Office, Lusaka Zambia, Lusaka, Zambia  Department of Psychology, University of Zambia, Lusaka, Zambia, Lusaka, Zambia  

Characterizing Neurodevelopmental Function in ZARD: Insights from the Vineland Adaptive Behavior Scale

Author:Park, Sue   Falbo, Kristin   Raskopf, William   Morcos, Sara   Bearden, David   

Session Name:P8: Child Neurology and Developmental Neurology: Neuromuscular Disorders 2  

Topic:Child Neurology and Developmental Neurology  

Program Number:P8.009  

Author Institution:University of Rochester School of Medicine, Rochester, NY  Roberts Wesleyan University, Rochester, NY  University of Rochester School of Medicine, Oconomowoc, WI  University of Rochester School of Medicine, NY