To describe a successful model for actively engaging caregivers in an exercise program originally designed for individuals with Parkinson’s disease.

Physical therapy and exercise programs for people with Parkinson’s disease are available in both community and clinical settings, but they rarely address the needs of caregivers. The caregiver is most often the chauffeur and escort rather than a co-beneficiary. Because exercise interventions are inherently adaptable and socially oriented, they offer an underutilized opportunity to include caregivers in meaningful ways. The program described here is led by a licensed physical therapist with expertise in leading groups, and intentionally incorporates caregivers as participants.

Caregiver involvement began informally but quickly proved beneficial, enhancing the group’s cohesion and overall experience. Recruitment messaging was revised to emphasize inclusivity (“Everyone welcome”), reframing the program as a shared activity. Participation trends and caregiver feedback were tracked over several years, providing qualitative and quantitative data on engagement. While the participant pool is self-selected and attrition is not systematically monitored, longitudinal surveys offer insights into evolving participant priorities.

The program has demonstrated consistent growth and strong engagement among patients, caregivers, and volunteers, with participation increasing prior to the pandemic, and then, more steadily, from 2021 to 2025. Survey responses reveal a shift in priorities: social connection has become the primary perceived benefit, surpassing the exercise itself. Notably, some caregivers continue their involvement with the program even after the death of their partner with Parkinson’s disease, underscoring the program’s broader social value.

An exercise program designed for patients can be effectively adapted to engage caregivers as co-participants. This inclusive approach enhances program sustainability, fosters meaningful social networks, and provides mutual benefits beyond the original therapeutic goals.