Moving From Grant Support to Non-profit Status: A Case Study in Financial Independence for a Patient-focused Program
Sarah Ingersoll1, Kris Mendenhall2, Kenneth Hayashida3, Louis Castro4
1Neurology, University of Southern California, 2Parkinson's Foundation Research Advocate, 3retired, 4Castropt.com
Objective:

To describe a practical approach by which a small, patient-centered exercise program operating within a university setting achieved financial independence and organizational stability by transitioning from grant reliance to non-profit status.

Background:

For many years, a free community exercise program serving individuals with neurological conditions depended on institutional grant support to cover personnel and operational costs. Increasing competition for grant funding and growing administrative constraints within the university environment prompted exploration of alternative funding models to ensure program continuity.

Design/Methods:

Options considered included partnering with an existing non-profit organization. However, logistical, administrative, and cultural-fit challenges made this path impractical. As payroll deadlines approached, the program launched a GoFundMe campaign, rebranded its relationship with the university as “collaboration,” and—using generative AI resources—navigated the process of establishing an independent 501(c)(3). Liability coverage appropriate for a community exercise program was secured through research into local nonprofit insurers.

Results:

AI-enabled research streamlined the incorporation process, allowing state registration as a public benefit corporation, liability coverage, and IRS recognition of non-profit status within weeks. Donor enthusiasm was strong, with patient contributions readily directed toward sustaining the program’s mission. Transitioning to nonprofit status provided financial stability, operational flexibility, and a more direct relationship with the program’s community of supporters.

Conclusions:
Establishing a dedicated nonprofit proved to be an efficient and replicable strategy for sustaining a small, mission-driven health program. This approach reduces dependency on uncertain grant funding, strengthens community engagement, and supports continuity of care. It offers a viable model for similar initiatives seeking long-term stability and independence.
10.1212/WNL.0000000000217079
Disclaimer: Abstracts were not reviewed by Neurology® and do not reflect the views of Neurology® editors or staff.