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Incorporating Patient Perspectives into a Composite Score for Measuring Disease Progression in Spinocerebellar Ataxia (SCA)

Author:Potashman, Michele   Rogula, Basia   Powell, Lauren   Korol, Ellen   Dickson, Samuel   Hendrix, Suzanne   Heinrich, Maggie   Rudell, Katja   Abetz Webb, Linda   Beiner, Melissa   Coric, Vlad   Rosenthal, Liana   Perlman, Susan   Schmahmann, Jeremy   L'Italien, Gilbert   

Session Name:P12: Movement Disorders: Ataxia 2  

Topic:Movement Disorders  

Program Number:P12.028  

Author Institution:Biohaven Pharmaceuticals, New Haven, CT  Broadstreet HEOR, Vancouver, BC, Canada  Pentara Corporation, Millcreek, UT  Parexel International, London, United Kingdom  Patient-Centered Outcomes Assessments, Bollington, United Kingdom  Johns Hopkins School of Medicine, Lutherville, MD  UCLA School of Medicine, Los Angeles, CA  Massachusettes General Hospital, Boston, MA