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              Longitudinal Evaluation and Optimization of the Parkinson’s Disease-health Index: A Disease-specific Patient-reported Outcome Measure for Parkinson’s Disease Clinical Trials

              Author:Irwin, Charlotte   Seabury, Jamison   Engebrecht, Charlotte   Weinstein, Jennifer   Varma, Anika   Rosero, Spencer   Shupe, Christina   Kanagaiah, Preshetha   Monickaraj, Judith   Heatwole, John   Arky, Abigail   Zizzi, Christine   Dilek, Nuran   Purks, Jennifer   Adams, Jamie   Dorse,   

              Session Name:S37: Movement Disorders: Clinical Trials  

              Topic:Movement Disorders  

              Program Number:S37.010  

              Author Institution:University of Rochester Center for Health + Technology, Cheektowaga, NY  University of Rochester Center for Health + Technology, Rochester, NY  Cornell University, Pittsford, NY  St. Francis Hospital, West Hartford, CT  University of Rochester Medical Center, Center for Health + Technology (CHeT), Rochester, NY  University of Rochester Department of Neurology, Rochester, NY  

              Results from a Remote 18-month Longitudinal Study in Friedreich’s Ataxia (LEOPARD-FA)

              Author:Monickaraj, Judith   Shupe, Christina   Seabury, Jamison   Varma, Anika   Rosero, Spencer   Weinstein, Jennifer   Engebrecht, Charlotte   Irwin, Charlotte   Kanagaiah, Preshetha   Larkindale, Jane   Walther, Susan   Wagner, Ellen   Dilek, Nuran   Heatwole, John   Zizzi, Christine   Pa,   

              Session Name:P6: Movement Disorders: Ataxia 1  

              Topic:Movement Disorders  

              Program Number:P6.016  

              Author Institution:University of Rochester Center for Health + Technology, Rochester, NY  University of Rochester Center for Health + Technology, Cheektowaga, NY  University of Rochester Center for Health + Technology, Rochester, NY 14642, NY  University of Rochester, Department of Neurology, Rochester, NY  University of Rochester School of Medicine and Dentistry, Rochester, NY  College of Agriculture and Life Sciences, Cornell University, Pittsford, NY  Children’s Hospital of Philadelphia, Philadelphia, PA  

              LEOPARD-DMD: Six-Month Results of Longitudinal Study of Disease Progression of Duchenne Muscular Dystrophy through the Patient and Caregiver Perspective

              Author:Shupe, Christina   Engebrecht, Charlotte   Weinstein, Jennifer   Varma, Anika   Rosero, Spencer   Irwin, Charlotte   Kanagaiah, Preshetha   Monickaraj, Judith   Brocht, Alicia   Auinger, Peggy   Guntrum, Debra   Ciafaloni, Emma   Heatwole, Chad   

              Session Name:P7: Child Neurology and Developmental Neurology: Neuromuscular 2  

              Topic:Child Neurology and Developmental Neurology  

              Program Number:P7.007  

              Author Institution:Center for Health and Technology, University of Rochester, Rochester, NY  University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, UT  University of Rochester Medical Center, Rochester, NY  

              Patient-Reported Symptoms of Importance for Individuals with Mitochondrial Disease

              Author:Shupe, Christina   Chung, Kaitlin   Weinstein, Jennifer   Irwin, Charlotte   Kanagaiah, Preshetha   Engebrecht, Charlotte   Monickaraj, Judith   Kalra, Sachi   Mains, Autumn   Cook, Glen   Haigney, Mark   Heatwole, Chad   

              Session Name:P12: General Neurology Posters 5  

              Topic:General Neurology  

              Program Number:P12.010  

              Author Institution:Center for Health + Technology, University of Rochester, Rochester, NY  University of Rochester, Rochester, NY  Walter Reed National Military Medical Center, Bethesda, MD  University of Rochester Medical Center, Rochester, NY