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Patient Engagement and Co-creation of Rare Disease Research: Lessons from the Global Moyamoya Patient Registry

Author:Houle, Dean   Kocher, Sophia   Houle, Roxanne   Stratton, Catherine   

Session Name:P12: Cerebrovascular Disease and Interventional Neurology: Global Health, Community, and Patient-centered Care  

Topic:Cerebrovascular Disease and Interventional Neurology  

Program Number:P12.013  

Author Institution:Dalla Lana School of Public Health, Toronto, ON, Canada