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Person-Centered Care and Trial Design for Progressive Supranuclear Palsy: A Collaborative Project of AFTD and CurePSP

Author:Dodge, Shana   Shurer, Jessica   Ali, Farwa   Irwin, David   Kremen, Sarah   Lin, Chi-Ying (Roy)   Rojas-Martinez, Julio   VandeVrede, Lawren   Wang, Catherine   Wills, Anne Marie   Diaz, Kristophe   Dacks, Penny   

Session Name:P8: Aging, Dementia, and Behavioral Neurology: Non-AD Treatments  

Topic:Aging, Dementia, and Behavioral Neurology  

Program Number:P8.020  

Author Institution:Association for Frontotemporal Degeneration, King of Prussia, PA  Mayo Clinic, Rochester, MN  University of Pennsylvania, Philadelphia, PA  Cedars-Sinai Medical Center, Department of Neurology, Los Angeles, CA  Baylor College of Medicine, Houston, TX  UCSF, San Francisco, CA  MGH, Boston, MA  

Leveraging the Direct-to-Participant FTD Disorders Registry (FTDDR) to Enable Research on FTD Disorders

Author:Milliard, Carrie   Reddy, Sweatha   Vincent, Lakecia   Krause, Mary   Dacks, Penny   

Session Name:P11: Aging, Dementia, and Behavioral Neurology: Co-morbidities, Complications, and Case Reports of Behavioral Neurology  

Topic:Aging, Dementia, and Behavioral Neurology  

Program Number:P11.008  

Author Institution:FTD Disorders Registry, King of Prussia, PA  Association for Frontotemporal Degeneration , King of Prussia, PA  

Exploring Quality of Life Impact Reported by Caregivers in the FTD Insights Survey

Author:Chenette, Devon   McCaughey, Stella   Reinecker, Robert   Milliard, Carrie   Dacks, Penny   Chow, Tiffany   

Session Name:P11: Aging, Dementia, and Behavioral Neurology: Co-morbidities, Complications, and Case Reports of Behavioral Neurology  

Topic:Aging, Dementia, and Behavioral Neurology  

Program Number:P11.010  

Author Institution:Alector, South San Francisco, CA  The FTD Disorders Registry, Scarborough, ME  AFTD, King of Prussia, PA