The Feasibility and Clinical Impact of a Student-led Intergenerational Program on Demoralization and Psychosocial Functioning in Persons with Parkinson's Disease
Jaskeerat Gujral1, Udit Garg1, Om Gandhi1, Whitley Aamodt1
1University of Pennsylvania
Objective:
To evaluate the preliminary impact of "Parkinson's Pals," a virtual, student-led intergenerational program, on demoralization and psychosocial functioning in persons with Parkinson's disease (PD).
Background:

Persons with PD often experience demoralization, characterized by hopelessness and loss of meaning, and impaired psychosocial functioning. Interventions addressing these psychological aspects of PD are crucial but often overlooked in traditional treatment approaches.

Design/Methods:

Nine PD patients (mean age 67.3 years; 3 male, 6 female; all White/Non-Hispanic) were paired with undergraduate students from a single university for an 8-week virtual interaction program. Students and patients met twice monthly for 1 hour to discuss childhood stories, common interests and hobbies, career aspirations, and lived experiences. Demoralization was assessed using the Kissane Demoralization Scale (KDS), and psychosocial functioning was measured using the Scales for Outcomes in Parkinson’s Disease-Psychosocial Functioning (SCOPA-PS). Mean pre- and post-program scores were compared using paired t-tests.

Results:
The program demonstrated improvements in multiple domains of psychosocial well-being. Demoralization levels were notably reduced, with an 8.56% reduction in KDS scores (n=8, p=0.02). Psychosocial functioning also improved slightly, as evidenced by a 13.9% decrease in SCOPA-PS scores (n=5, p=0.11). All participants enjoyed the program and expressed their willingness to recommend it to others. 
Conclusions:

The Parkinson's Pals program demonstrates promising potential in alleviating demoralization and improving psychosocial functioning in persons with PD through intergenerational connections with undergraduate students. High patient satisfaction also underscores the value of social interventions in PD care. Given the small sample size, larger-scale studies are warranted to validate these findings and explore the long-term impact of psychosocial interventions on patient outcomes.

10.1212/WNL.0000000000212303
Disclaimer: Abstracts were not reviewed by Neurology® and do not reflect the views of Neurology® editors or staff.