Putting MINDSET Action Plans into Action
Mawj Alzakar1, Patty Gonzales1, Katarzyna Czerniak2, Ross Shegog2, Cate Brocker3, Alison Kukla3, Caryn Seebach4, Eyal Bartfeld4, Susan Herman1
1Barrow Neurological Institute, Department of Neurology, 2UT Health Houston, School of Public Health, 3Epilepsy Foundation of America, 4CareTuner, Inc.
Objective:

To describe integration of the MINDSET decision aid with individualized interventions in a comprehensive epilepsy clinic.

Background:

MINDSET, a Managing Epilepsy Well (MEW) decision aid, creates action plans highlighting key areas for self-management. CareTuner, a neurology remote monitoring system, allows tracking of many epilepsy lifestyle behaviors (medication, sleep, seizures, and mood) through a patient app (EpiDiary).  We leveraged Mindset's action plans and CareTuner-based interventions and tracking to achieve shared and realistic self-management goals.  

Design/Methods:

Data was collected from February to October 2024. Epilepsy patients (n=26) completed the MINDSET questionnaire on seizure control, medication adherence, lifestyle, depression, quality of life, and self-management. Generated action plans identified areas for improvement and patients’ goals. Health care providers utilized MINDSET during clinic visits to collaboratively prioritize areas to address. Interventions included patient education, prescription of CareTuner, or referral to MEW self-management programs (PACES). Changes in self-management were confirmed with CareTuner.

Results:

All (100%, n=26) patients were flagged by MINDSET as needing to improve at least one lifestyle behavior. Nearly half (46%, n=12) reported never, rarely, or sometimes tracking their seizures, but only one selected seizure tracking as their top goal. A third (34%, n=9) needed improvement in medication adherence behaviors. Most patients selected using reminders to take seizure medications (n=4) or not spreading out time between doses when medications are running out (n=3) as one of their goals. The CareTuner app was implemented in 12/26 (46%), allowing confirmation of seizure tracking, medication adherence, or sleep behaviors. Examples will be provided. The majority of patients selected improvement in social interactions as a goal, and were referred to an in-clinic PACES program or to Epilepsy Foundation support groups.

Conclusions:

MINDSET fosters efficient physician-patient discussions during clinical visits, enabling development of personalized interventions. A remote therapeutic monitoring app (CareTuner) can confirm and reinforce positive self-management behaviors.

10.1212/WNL.0000000000212142
Disclaimer: Abstracts were not reviewed by Neurology® and do not reflect the views of Neurology® editors or staff.