Background:
Historically, the role of a neurologist has extended far beyond diagnosing and treating patients, encompassing advocating for the rights and welfare of their patients. From early pioneers who countered social stigma with scientific research, to modern-day neurologists who have a hand in making policy, their efforts have evolved alongside the field, shaping both clinical approaches and public perceptions.
Design/Methods:
The authors reviewed the contributions of prominent neurologists to disability advocacy, focusing on examining their impact on both the medical field and social advocacy. This analysis aimed to identify patterns in how these neurologists influenced public policy, societal perceptions, and clinical practices regarding disability.
Results:
We identified Jean-Martin Charcot, William Gordon Lennox, Isabelle Rapin, and Pratibha Singhi as prominent neurologists who have shaped the field of disability advocacy.
We identified three main trends throughout their legacy: the advancement of medical understanding of neurological conditions; reducing stigma and promoting inclusion; and expanding educational outreach. The efforts of these neurologists not only improved patient care but also shifted public perceptions and ensured future generations of neurologists are equipped to continue their work of disability advocacy.
Conclusions:
Reflecting on the legacies of neurologists, such as Charcot, Lennox, Rapin, and Singhi, reminds us that advocacy is as essential to our patients as clinical expertise. However, this historical perspective also unearths past harms, such as William Gordon Lennox’s support of eugenics and Walter Freeman’s promotion of controversial surgeries, revealing how neurologists can contribute to enduring harm within the disability rights movement when not centered on patient voices. Neurologists have a responsibility to advocate in a way that prioritizes the lived experiences of those with disabilities. We also provide resources for neurologists looking to become better patient advocates and to support patients and caregivers with disabilities.
Disclaimer: Abstracts were not reviewed by Neurology® and do not reflect the views of Neurology® editors or staff.