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  • The University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, UT

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Results from a 12-month Natural History Study of Patients with Cerebral Cavernous Malformations

Author:Heatwole, Chad   Seabury, Jamison   Varma, Anika   Rosero, Spencer   Engebrecht, Charlotte   Khosa, Shaweta   Shupe, Christina   Irwin, Charlotte   Heatwole, John   Zizzi, Christine   Alexandrou, Danae   Dilek, Nuran   Watson, Roshawn   Blei, Holly   Lee, Cornelia   Weinstein, Jennifer   

Session Name:S41: Sociodemographics of Stroke and Policy in Stroke Care  

Topic:Cerebrovascular Disease and Interventional Neurology  

Program Number:S41.006  

Author Institution:University of Rochester Center for Health + Technology, Rochester, NY  The University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, UT  Cornell University, College of Agriculture and Life Sciences, Ithaca, NY  Loyola University of Chicago, Stritch School of Medicine, Chicago, IL  University of Rochester, Rochester, NY  Recursion Pharmaceuticals, Inc., Salt Lake City, UT  Alliance to Cure Cavernous Malformation, Charlottesville, VA  

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Development and Validation of Two Patient-reported Outcome Measures: The Adrenoleukodystrophy-Health Index (ALD-HI) and Adrenomyeloneuropathy-Health Index (AMN-HI)

Author:Varma, Anika   Khosa, Shaweta   Weinstein, Jennifer   Seabury, Jamison   Rosero, Spencer   Engebrecht, Charlotte   Dilek, Nuran   Heatwole, John   Irwin, Charlotte   Shupe, Christina   Chung, Kaitlin   Sawyer, Eileen   Paker, Asif M   Brooks, Gregory   Beals, Chan   Gandhi, Rohan   Heatwole, Chad   

Session Name:P11: General Neurology: Novel Concepts  

Topic:General Neurology  

Program Number:P11.001  

Author Institution:University of Rochester Center for Health + Technology, Rochester, NY  The University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, UT  University of Rochester, Rochester, NY  Cornell University, Ithaca, NY  SwanBio Therapeutics Ltd., Bala Cynwyd, PA  Vertex Pharmaceuticals, Boston, MA  Autobahn Therapeutics, San Diego, CA  

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