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              Development and Validation of Two Patient-reported Outcome Measures: The Adrenoleukodystrophy-Health Index (ALD-HI) and Adrenomyeloneuropathy-Health Index (AMN-HI)

              Author:Varma, Anika   Khosa, Shaweta   Weinstein, Jennifer   Seabury, Jamison   Rosero, Spencer   Engebrecht, Charlotte   Dilek, Nuran   Heatwole, John   Irwin, Charlotte   Shupe, Christina   Chung, Kaitlin   Sawyer, Eileen   Paker, Asif M   Brooks, Gregory   Beals, Chan   Gandhi, Rohan   Heatwole, Chad   

              Session Name:P11: General Neurology: Novel Concepts  

              Topic:General Neurology  

              Program Number:P11.001  

              Author Institution:University of Rochester Center for Health + Technology, Rochester, NY  The University of Utah Spencer Fox Eccles School of Medicine, Salt Lake City, UT  University of Rochester, Rochester, NY  Cornell University, Ithaca, NY  SwanBio Therapeutics Ltd., Bala Cynwyd, PA  Vertex Pharmaceuticals, Boston, MA  Autobahn Therapeutics, San Diego, CA