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The Myotonic Dystrophy Type 2 Health Index (MD2HI): A Multifactorial, Disease-specific, Patient-reported Outcome Measure for Use in Therapeutic Trials

Author:Engebrecht, Charlotte   Rosero, Spencer   Weinstein, Jennifer   Seabury, Jamison   Varma, Anika   Khosa, Shaweta   Shupe, Christina   Irwin, Charlotte   Brocht, Alicia   Heatwole, Chad   

Session Name:P3: Neuromuscular and Clinical Neurophysiology (EMG): Genetic Muscle Diseases  

Topic:Neuromuscular and Clinical Neurophysiology (EMG)  

Program Number:P3.003  

Author Institution:University of Rochester Center for Health + Technology, Cheektowaga, NY  University of Rochester Center for Health + Technology, Rochester, NY  

Initial Development of the Myasthenia Gravis-Health Index (MG-HI): Measuring the Most Prevalent and Impactful Symptoms Identified in Myasthenia Gravis

Author:Engebrecht, Charlotte   Rosero, Spencer   Khosa, Shaweta   Weinstein, Jennifer   Seabury, Jamison   Varma, Anika   Shupe, Christina   Irwin, Charlotte   Brocht, Alicia   Carbunar, Olimpia   Benatar, Michael   Heatwole, Chad   

Session Name:P10: Neuromuscular and Clinical Neurophysiology (EMG): Myasthenia Gravis 3  

Topic:Neuromuscular and Clinical Neurophysiology (EMG)  

Program Number:P10.013  

Author Institution:University of Rochester Center for Health + Technology, Cheektowaga, NY  University of Rochester Center for Health + Technology, Salt Lake City, UT  University of Rochester Center for Health + Technology, Rochester, NY  University of Miami Miller School of Medicine, Department of Neurology, Miami, FL